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The term neurofibromatosis refers to a disorder which is genetic and results in the formation of tumors on nerve tissue. Unlike many similar conditions, tumors are not isolated to any particular part of the nervous system. Therefore, neurofibromatosis can even affect the brain or spinal cord.

In the majority of cases, the tumors are benign. However, there is a risk that tumors will become cancerous in some patients. While most patients experience only mild symptoms from neurofibromatosis, a range of potentially serious health problems can result from the disorder. Cardiovascular problems, loss of hearing or vision and impaired learning are just some of the complications associated with neurofibromatosis.

Symptoms of Neurofibromatosis

Although it is considered a disorder, there are three forms of neurofibromatosis known as NF1, NF2 and schwannomatosis. Each form of the disorder presents with different symptoms and potential complications. The symptoms of NF1, which is also the most common, are easily missed without a diagnosis from a relevant medical professional and may include:

  • Light brown spots on the skin – usually over six in number
  • Noticeable bumps on the iris
  • Pronounced learning difficulties
  • Soft bumps under the skin
  • Freckled armpits or groin

Although less common, NF2 is more easily identified due to the formation of benign tumors in the ears that typically affect hearing. The rarest form, schwannomatosis, usually doesn’t present symptoms until the early twenties, but can cause serious complications such as muscle loss and prolonged numbness in various parts of the body.

Neurofibromatosis Treatment

As the tumors that form due to neurofibromatosis affect the nervous system, partial or full removal can help sufferers manage the disorder. Visible symptoms generally present in childhood, and tumors may be sufficiently progressed to the point where they are causing pain, discomfort and other issues. Some of the areas where the Vascular Birthmark Center can help include pain management, reduction of sensory impacts and promotion of learning development.

Dr. Greg Levitin will provide an evaluation to determine the best course of treatment for each patient. There is no known cure for the condition, so treatment emphasizes managing associated symptoms through surgery to remove tumors and providing pain relief.

Should I Consult with a Doctor?

If you are at all concerned that you or your child has a form of neurofibromatosis disorder, we do recommend consulting with Dr. Greg Levitin. Earlier diagnosis is often crucial in effectively managing neurofibromatosis and reducing the risks associated with growing tumors. The Vascular Birthmark Center can also provide any necessary referrals should your child need them, ensuring that he or she receives the best care possible.

To book your child a consultation with Dr. Levitin, contact our office today and speak to one of our professional team members.

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Our Patient Reviews
The Vascular Birthmark Center: Gregory M. Levitin, MD

4.8 / 5.0

Based on 27 reviews

Abril M.

Dr. Levitin is very knowledgeable, compassionate and professional. Five years ago, I needed to find information about a birth mark that my newborn daughter started to grow a couple days after birth. I was afraid, I did not feel like I got any clear information about it through my insurance; also, they did not offer any course of treatment for it. I started to look for information, the birthmark was growing each day, information was scarce and I just got more scared. Finally, I found a video in Youtube from a grandmother who was very grateful after finding treatment for her grand daughter through The Birthmark Foundation. It was a huge blessing to me and my family. I found Dr. Levitin, I contacted him thinking he probably would not even answer. I was wrong, he kindly answered promptly, got in touch with me and soon he had a plan : ) I went to see him at the Birthmark Center in Los Angeles. He explained everything in a way that it was so clear to understand, no question I made was insignificant and his answers were each very informative. I really never have had an experience with a doctor who explains and speaks in such a way. I left his office knowing that my daughter was in the best hands and the best care. I first thank God for the Birthmark Foundation, a great organization with the highest quality of doctors. Also, a very special thanks to Dr. Levitin for all his help and kindness, for listening to my concerns and answering each and every question. And last, but no least, to the Birthmark Foundation Center in Los Angeles : ) I hope many children can find help/care in this place as I found it for my daughter. Thank you forever.

Ryan E.

I will be telling tales of the good doctors compassion till time comes to an end. Because of Dr Levitin, I have more confidence in my every day life. He was fast, knowledgeable, precise and all with a disarming sense of humor. Two thumbs up!

Carla M.

I wanted to show you how much better Hailey's tongue looks and let you know her speech has already improved so much!!! Her speech teacher is thrilled!!!! Thank you so much for everything you did for her. You are an excellent surgeon with a great bedside manner- we are forever grateful to you!!! We are so appreciative!

Danielle L.

we are forever grateful for Dr. Levitin. My daughter Lena had surgery to remove her hemangioma that was located on her forehead at just 6 month old. she healed beautifully and we couldn't be happier with how minimal her scar is, even almost 4.5 years later. Dr. Levitin is caring, compassionate, and such a great doctor/surgeon overall. He had our daughter's best interest and I knew she was in good hands. I highly recommend him any chance I get!


My name is Chris and I was recently treated for an AVM on my forehead by Dr. Gregory Levitin of New York (New York Eye and Ear Infirmary). Thankfully, I live within a few hours of NYC. In brief, I would like to say that Dr. Levitin is very capable doctor with a lot of experience with AVMs. He responds quickly to e-mail, texts, and phone calls. He accepts insurance. He takes a "team approach" and will be your "QB" and involve other specialists as necessary. In my particular case they were Dr. Raj Shrivastava (Mt Sinai) and Dr. Raphael A. Ortiz (Lenox Hill) in NY. I recommend contacting Dr Levitin for a consultation if you suspect you have an AVM. All 3 Drs are just good people. When I spoke to them, they treated me like like an equal. I felt like they were advising me as a close friend or family member. Like many that suffer with AVMs I was at first mis-diagnosed. What was thought to be a just a simple cyst turned out to be an AVM. Surgery to remove the cyst made the AVM about 5x bigger. My treatment entailed a few MRIs and CAT scans to determine what was going on and the treatment plan. This was followed by consultation with the 3 Drs mentioned above and finally a 2-day procedure. On day 1 Dr Ortiz embolized the AVM. On day 2 Dr Levitin and Dr Shrivastava removed the AVM from my skull and put some metal mesh there to fill the "hole". It has been 6-months since the surgery and so far I have not had any recurrence. In honor of Vascular Birthmark Awareness Day and to thank these Drs for all they have done for me, I just want to give everyone a solid reference. Finding the right doctor for this type of stuff makes all the difference.

Valle S.

I just discovered this page i have also a birthmark I always experiences bully because of this. I don't know what kind of birthmark is this if it is harmful ? I hope Dr. Levitin notice this message in this way I think he can help me :) :) #DrLevitin

Alicia M.

This year marks the 10th that I contacted VBF for help. Since then I have been under the care of Dr. G Levitin and Dr. R. Ortiz, they are my guardian healing angels! Thanks VBF for not only helping me but also for letting me be a volunteer in the foundation whenever I am needed. A Big Hug to all from MIAMI... Alicia

Alexander G.

Totally positive experience. Dr. Levitin is a great professional. He has diagnosed and treated my nose breathing problem, significantly improving my quality of life. Office staff is very professional. Appointments always kept on time. Strongly recommend.