Plexiform Neurofibromas

A type of tumor that grows on nerve tissue is known as a neurofibromas. NF1 is a congenital form of neurofibromas and is regarded as the most common type. Numerous health complications can arise from NF1, including curvature of the spine, impaired eyesight and learning difficulties. It is for this reason that children with NF1 should attend yearly evaluations to identify any new neurofibromas forming or associated complications.

Plexiform Neurofibromas Treatment

Plexiform neurofibromas is typically diagnosed in childhood due to the presence of light brown patches that give rise to concern. Freckles around the groin or under the armpits are also signs that your pediatrician may pick up on during wellness visits. As plexiform neurofibromas tumors can grow on nerve tissue, there is the potential for progressive health issues to develop as your child gets older. In many cases, an MRI is used to determine the size of tumors and how they are impacting on surrounding nerve tissue, organs or bone.

Larger tumors are likely to cause disfiguration if allowed to grow unchecked. There is also a risk of benign tumors becoming malignant. The preferred treatment path for children with plexiform neurofibromas is removing the tumors. However, surgery is further complicated by the proximity of tumors to nerve tissue. In cases where there exists a higher risk of nerve damage, partial removal of tumors may still be an option. Dr. Greg Levitin will provide a full evaluation for all patients and provide suitable alternative treatment options when surgery is not a viable treatment.

Additional Plexiform Neurofibromas Treatments

Removing plexiform neurofibromas tumors are just one part of a larger treatment plan. Dr. Greg Levitin will provide recommendations to help you pursue treatment or help with other complications such as learning difficulties, ADHD diagnosis, loss of eyesight or spinal curvature. There is no known cure for plexiform neurofibromas, so a combination of treatments and support are designed to help your child manage any complications that arise from the disorder and improve quality of life.

The Vascular Birthmark Center provides a range of resources that are specifically designed to give our patients access to the services they need to manage every aspect of plexiform neurofibromas. Dr. Levitin encourages a culture of education and inquiry, whereby patients are welcome to ask questions and become empowered when it comes to managing any challenges they may face.

If your child has one or more symptoms of plexiform neurofibromas, but has never been diagnosed, you can arrange an evaluation at the Vascular Birthmark Center with Dr. Greg Levitin. We can help guide you to choose the right approach to treatment for your child as part of an open and positive discussion at our offices.

Contact the Vascular Birthmark Center today if you would like to learn more about plexiform neurofibromas and what it means for your child.